HBO/Cinemax has produced a wonderful documentary of Ami Ankilewitz, who was born with the rare disease SMA/2. His mother was told he would only live to the age of 6 - she told the doctor that he was not G-d and that he could not say how long her child would have to live. Now, 34 and weighing only 39 pounds (and living and working in Israel as a CG animator), the film takes us on Ami's journey back to the United States to find his brother and the doctor who originally (mis)diagnosed him. Link added 2005.12.20.
Link: 39 pounds of love
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This page contains a single entry by Karen Nakamura published on December 12, 2005 10:24 AM.
Equipment: Canon XL-H1 arrives was the previous entry in this blog.
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uhh . . . karen, where's the link?